Executive Director
Reporting to the Board of Directors, the Executive Director will work in close collaboration with the Scientific Director and Chief Mission Officer, both Vice Chairs on the Board, and oversee and inspire a dedicated staff of six, fostering a culture of excellence, collaboration, and accountability. The LAM Foundation is headquartered in Cincinnati, Ohio, where three staff members are located with three members of staff located outside of Ohio. The LAM Foundation contracts its financial, human resources, IT, and other consulting services to supplement its organizational capacity.
Because The LAM Foundation is a small organization with an annual operating budget of approximately $1.5 million, the Board of Directors created and appointed two key officer positions to provide additional expertise, time, and support in collaboration with the Executive Director. This collaborative leadership model enhances the organization's capabilities through the activities of:
- The Scientific Director, a member of the Board of Directors and a recognized expert in LAM science and clinical medicine, who manages key relationships in the scientific community, oversees the basic and translational research strategy, the Scientific Advisory Board, and the research grant-making process.
- The Chief Mission Officer, a member of the Board of Directors, focuses on building strategic relationships in the rare disease and women's health sectors and fosters partnerships with academic, private, and public institutions. This role ensures long-term organizational viability by securing diverse funding sources and establishing strategic alliances.
This unique collaborative approach among the Executive Director, Scientific Director, and Chief Mission Officer is intended to support the responsibilities of the Board and Executive Director in a team approach. Collaboration and consensus building have been instrumental in building a vibrant, focused team of exceptional leadership.
The recent history of this unique approach to leadership in a small organization with scarce resources has been highly successful. We intend to find an Executive Director who is self-confident in their position and eager to continue this unique format. The Board of Directors retains its governance, fiduciary, strategic, and legal responsibilities. Any issues that may arise among the ED, SD, and CMO that cannot be resolved through a collaborative consensus may go to the Board for a decision.
Key Responsibilities:
Operations and Team Management
Have a servant-leader approach and empower and support staff, volunteers, and affiliated communities, enabling them to deliver expertise and services to advance the mission of The LAM Foundation.Lead and direct daily operations, including meeting regularly with board members, staff, consultants, and contracted resources.Manage contracted services to support the Foundation.Manage organizational finances, including the annual budget, financial reporting, cash flow, and expenditures.Fundraising and Programs
Lead fundraising efforts from the design of strategies, identification of and nurturing potential donors through campaign implementation, and securing financial resources to support initiatives.Oversee the development, implementation, and evaluation of programs that align with the organization's mission and goals.Lead large initiatives and manage supporting team for significant events such as the LAMposium conference.External Relationship Building and Public Speaking
Serve as a public representative of the organization at events, conferences, and media engagements, involving subject matter experts as necessary.Engage with stakeholders such as donors, researchers, clinicians, and the LAM patient community to ensure strong partnerships and support.Build close relationships with patient groups and actively engage – speaking at LAM events.Key Liaison, Working Closely with the Board of Directors
Collaborate with the Board of Directors on governance, fiduciary responsibilities, and compliance matters.Support a strategic planning process that includes annual evaluations of core metrics, developing the annual tactical plan under the board-adopted Strategic Plan, and ensuring a successful grant-making process for LAM research.QUALIFICATIONS
A minimum of 15 years of leadership experience in positions of increasing responsibility with demonstrable growth or impact with a not-for-profit healthcare organization.Experience with a similarly sized or larger nonprofit with a proven track record of effectively leading an organization through growth and change.Demonstrated success creating and implementing successful fundraising strategies, taking ownership of select individual solicitations, grants, sponsorships, and contracts.Experience collaborating on strategic and program objectives with healthcare professionals, including researchers, physicians, and professionals with technical expertise.A history of successfully interfacing with a diverse and engaged board of directors.Strong track record hiring, leading, motivating, and engaging a team of committed professionals.Excellent presentation skills to effectively lead and facilitate internal and external meetings.Outstanding written and verbal communication skills that can be tailored to small or large diverse groups.An undergraduate degree is required.LEADERSHIP COMPETENCIES AND PERSONAL CHARACTERISTICS
A hands-on, goal-oriented manager with demonstrated success leading, recruiting, and developing high-performing teams, including a volunteer workforce.Dynamic and entrepreneurial with the ability to inspire enthusiasm, trust, and commitment from staff, various stakeholders, and a board of directors.A collaborative consensus-builder open to thoughtful counsel and advice from board members, other volunteers, and staff, and who is pragmatic and flexible enough to change their mind when reason calls for change.Solid business judgment and the ability to thoughtfully consider all available information, draw sound conclusions, and make calculated recommendations and decisions.Unwavering integrity coupled with the highest level of personal and professional ethics; genuine compassion and concern for the physical and mental health of those living with lymphangioleiomyomatosis, as well as the family and friends who support them.Please contact Pam DeLuca at [email protected] or via phone 212-###-####.
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